I am so sorry to here that! its scary that she doesn't ware a helmet people should always ware one while riding not just because they have a illness. cant she get into trouble for not waring a helmet i know here in ny you can. im sorry you and your family are going through this
This is soooooo concerning because most people stop breathing during a seizure because of the muscle retractions. I stop breathing, according to witnesses, and I don't have Grand Mals. I feel for you. I think it's crazy that your health practitioners tell you that 20 minute seizures are ok and 4 hour seizures are hospital worthy. Despite the strokes, TBI, and other medical problems you may have, a 20 minute seizure is worrisome.
From the Epilepsy Foundation website:
"Unless your doctor has advised otherwise, a seizure in a child with epilepsy that ends after a couple of minutes does not usually require a trip to the emergency room.
However, if it lasts more than 5 minutes without any sign of slowing down, is unusual in some way, or if a child has trouble breathing afterwards, appears to be injured or in pain, or recovery is different from usual, call 911 for emergency help."
Again:
"If you have no specific directions from the doctor, call for emergency aid if the seizure continues for more than 5 minutes and shows no sign of slowing down, or if another seizure begins shortly afterwards."
http://www.epilepsyfoundation.org/ab...pilepticus.cfm
I think you need a new healthcare team. The website really only discusses children with epilepsy, but the patient management is the same. I hope things work out for you, and soon!
As i child i would go to the hospital wehn they would last that long but the seizure doctor said if they last for more that 1 to 4 hours to go to the hospital, like today i have had no seizure and im okay. he has been playing with the levels of the meds and they say it does cause increased seizures but when they last that long for more than 10 mins they start to slow down and im back to normal. but i see him this month i am going to be talking with him about a medician you take to slow them down when you go into one. its a nasal spray
Someone left me reputation asking me who my friend was. I'm certain that her mother had the article removed so I'd rather not bring it up again. Sorry if that's lame.
Well update I have gone to the seizure doctor and he has increased all my meds and added another one but on a bad note i have received bad news regrading my kidney i was told I have RTA type 1 &2 which is too much acid in my blood and my kidneys cant filter it it causes kidney stones electorate imbalance, poor kidney function and total renal failure so they will be putting me on meds to try and correct it but the downfall is my insurance does not cover it at all and it will cost $225.00 a month not a happy camper at all :(
Check with the medication manufacturer. There are programs available to help with costs that are not paid for by insurance. You can still have insurance and be eligible for assistance. Good luck to you!
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